Clinical Descriptions of MLD
- eMedicine An excellent, easy to read MLD overview covering the clinical, diagnosis, treatment, progression, medication (none) & follow-up care for MLD family members. Sept. 2008
- NIH/GeneReveiws Another well written and comprehensive MLD overview of MLD. Arvan Fluharty, UCLA, September Sept. 2008
- MEDLINEplus - Overview of MLD -
- National Inst Health, National Library of Medicine
- very detailed, thorough and technical
- easy to read - links to definitions of many technical terms
- Comprehensive & Detailed MLD Summary (~1995)
- Baylor College - Patient 37 with a good description of MLD
Other non-MLD Clinical Descriptions of Interest
- Online Mendelian Inheritance in Man - very comprehensive and technical from the National Center for Biotechnology Information
- MEDLINEplus - National Inst Health, National Library of Medicine
- National Organization for Rare Disorders (NORD)
- Human Gene Mutation database - very technical
- Pediatrics Journal - search for Metachromatic Leukodystrophy
- National Institute of Health - Office of Rare Disease clinical trial listing - search for Metachromatic Leukodystrophy
- Centerwatch clinical research overview and and clinical trials database - search for Metachromatic Leukodystrophy
- National Institute of Neurological Disorders and Stroke
- Bethany's Hope - Canadian Foundation supporting gene therapy based MLD research - sponsoring a lab in London, Ontario, Canada
- Stennis Foundation - Sponsoring research for a cure for MLD
- The Myelin Project - focused on accelerating the research on repair of the myelin damaged by the genetic diseases such as the leukodystrophies, and by acquired diseases such as multiple sclerosis.
- Hunter's Hope - is focused on increasing the public awareness of Krabbe Disease and other Leukodystrophies, increasing the likelihood of early detection and treatment, and fund research efforts to identify new treatments, therapies, and a cure for Krabbe Disease.
- Australian Leukodystrophy Support Group provides counseling, encouragement, support, resources, research and information leukodystrophy sufferers and their families.
- Brianne's LEAP (Leukodystrophy Education and Awareness Project) of Hope - is dedicated to raising public awareness and funds for research into white matter diseases, otherwise known as the Leukodystrophies
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- United Leukodystrophy Foundation (ULF) is a general resource covering all leukodystrophies, with an emphasis on ALD.
- l'Association Européenne contre les Leucodystrophies (ELA) - FRENCH - they have an extensive list of links for European organizations
- ASOCIACIÓN ESPAÑOLA CONTRA LA LEUCODISTROFIA - SPANISH
- "Mauro Baschirotto" - Associazione Malattie Rare - BIRD Foundation - ITALIAN
- ONG-Pela Vida-Núcleo de Apoio à Pesquisa Científica em Leucodistrofia Metacromática (LDM) - BRAZIL - Portuguese
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